The Man Whose Skin Fell Off | Real Stories

Jonny Kennedy is a man with a lot to do. He’s got just four months to move home, meet Nell McAndrew, fly a plane, visit Downing Street… and plan his own funeral.
So Johnny decided to work with filmmaker Patrick Collerton to document his last months, resulting in this uplifting, confounding and provocatively humorous story.
Though not shying away from the grim reality, the film is a celebration of a life lived to the full. It features an interview with his mother Edna who has been his life-long carer and now faces the prospect of Johnny’s death with disarming mixed feelings.